Monday, October 7, 2013

Helping A Home Be Muscular Dystrophy Friendly

A family trying to pay for modifications to their home in order to accommodate two sons with muscular dystrophy will benefit from a barbecue dinner planned for the Norco Fire Hall on Saturday, Oct. 12 from 7 to 11 p.m.

The boys are Jake and Ryan Fritz, ages 6 and 10, and they are students in the Pottsgrove School District, according to their grandmother, Gail McVicker.

According to a web site set up to support fundraising efforts, both boys have Duchenne Muscular Dystrophy, a progressive muscle-wasting disease with little treatment and no cure.

Progression of this disease includes the loss of one’s ability to walk around age 12 (a power wheelchair for Jake has just been ordered).

For the past five years, the Fritz family has been raising funds for Parent Project Muscular Dystrophy ( , a non-profit organization that supports advocacy and research efforts related to Duchenne MD. 

More recently, the family has been faced with more than $100,000 in expenses related to the boys’ disease progression, including the need for home modifications, assistive medical equipment and a wheelchair adaptive van.

The family has set a goal of raising $50,000 and so far has raised $7,450.

To further that figure, the barbecue dinner has been planned.

The dinner costs $30 (children under 5 are free) and includes wine, beer and other beverages in addition to a barbecue dinner catered by Moyer’s Catering.

The event will also feature “Upbeat Music” by Andy and Company, dancing, a silent auction and raffle drawings.

Specifically, the proceeds of the benefit will go to Happy 2 be Home, a non-profit organization that is helping the Fritz family meet costs for the home modifications.

Click here to access a mail-in form to sign up for the dinner. You can print it out and mail it to Hope Rocks for Jake & Ryan, P.O. Box 1331, Pottstown, PA 19464.

Or you can click here to order tickets on-line.

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