Thursday, October 16, 2014

Hope Can Rock Their World Saturday

Jake and Ryan Fritz

Blogger's Note: The following was provided by the family of Jake and Ryan Fritz.

Jake and Ryan Fritz are two bright and fun-loving boys, ages 7 and 11, who live in Pottstown.

These two brothers, ages 11 and 7, have Duchenne Muscular Dystrophy (DMD), a progressive muscle-wasting disease with little treatment and no cure. 

Of the many forms of muscular dystrophy DMD is the most common, vicious and aggressive. 

Progression includes the loss of one’s ability to walk, usually by age 12, with continued weakness resulting in the need for total assistance with all daily activities (eventually including breathing) and an abbreviated life expectancy.

Duchenne Muscular Dystrophy can be either genetic or occur spontaneously in any generation. In Jake and Ryan’s case, there was no family history. 

DMD knows no discrimination – it can strike boys of any race and location.

Recently, the Fritz family has been faced with more than $100,000 of disease-related expenses due to the boys’ weakening muscles including interior and exterior home modifications, assistive medical equipment and a wheelchair adaptive van.

To offset these expenses, the Fritz family has initiated the Hope Rocks Benefit held in conjunction with Happy 2 be Home, a non-profit organization working with families in the local area who have children with physical challenges. 

This upbeat event will be held be at the Norco Fire Department on Satuday, Oct. 18,  from 7 to 11 p.m. and will feature a live band, dancing, a delicious BBQ supper and a silent auction with many choice items. 

For more information about the Hope Rocks Benefit, visit or call 610-310-6746. 

For those who may not be able to attend the benefit there is an option to donate to Jake & Ryan's Special Needs Fund (see form) to help with the purchase of a handicapped accessible van and to widen the driveway so that the van ramp can extend to admit Jake’s wheelchair.

Jake and Ryan Fritz enjoy building legos, creating art, computer games and playing with their three cats, Millie, Mac and Lucky.

With all our hearts, thank you for reading this, spreading the word and helping to give Jake, Ryan and other such children a quality lifetime with as much comfort and mobility as possible!

No comments:

Post a Comment