Showing posts with label Hope Rocks. Show all posts
Showing posts with label Hope Rocks. Show all posts

Thursday, October 16, 2014

Hope Can Rock Their World Saturday

Jake and Ryan Fritz

Blogger's Note: The following was provided by the family of Jake and Ryan Fritz.

Jake and Ryan Fritz are two bright and fun-loving boys, ages 7 and 11, who live in Pottstown.

These two brothers, ages 11 and 7, have Duchenne Muscular Dystrophy (DMD), a progressive muscle-wasting disease with little treatment and no cure. 

Of the many forms of muscular dystrophy DMD is the most common, vicious and aggressive. 

Progression includes the loss of one’s ability to walk, usually by age 12, with continued weakness resulting in the need for total assistance with all daily activities (eventually including breathing) and an abbreviated life expectancy.

Duchenne Muscular Dystrophy can be either genetic or occur spontaneously in any generation. In Jake and Ryan’s case, there was no family history. 

DMD knows no discrimination – it can strike boys of any race and location.

Recently, the Fritz family has been faced with more than $100,000 of disease-related expenses due to the boys’ weakening muscles including interior and exterior home modifications, assistive medical equipment and a wheelchair adaptive van.

To offset these expenses, the Fritz family has initiated the Hope Rocks Benefit held in conjunction with Happy 2 be Home, a non-profit organization working with families in the local area who have children with physical challenges. 

This upbeat event will be held be at the Norco Fire Department on Satuday, Oct. 18,  from 7 to 11 p.m. and will feature a live band, dancing, a delicious BBQ supper and a silent auction with many choice items. 

For more information about the Hope Rocks Benefit, visit www.hoperocks.info or call 610-310-6746. 

For those who may not be able to attend the benefit there is an option to donate to Jake & Ryan's Special Needs Fund (see form) to help with the purchase of a handicapped accessible van and to widen the driveway so that the van ramp can extend to admit Jake’s wheelchair.

Jake and Ryan Fritz enjoy building legos, creating art, computer games and playing with their three cats, Millie, Mac and Lucky.

With all our hearts, thank you for reading this, spreading the word and helping to give Jake, Ryan and other such children a quality lifetime with as much comfort and mobility as possible!


Monday, October 7, 2013

Helping A Home Be Muscular Dystrophy Friendly



A family trying to pay for modifications to their home in order to accommodate two sons with muscular dystrophy will benefit from a barbecue dinner planned for the Norco Fire Hall on Saturday, Oct. 12 from 7 to 11 p.m.

The boys are Jake and Ryan Fritz, ages 6 and 10, and they are students in the Pottsgrove School District, according to their grandmother, Gail McVicker.

According to a web site set up to support fundraising efforts, both boys have Duchenne Muscular Dystrophy, a progressive muscle-wasting disease with little treatment and no cure.

Progression of this disease includes the loss of one’s ability to walk around age 12 (a power wheelchair for Jake has just been ordered).

For the past five years, the Fritz family has been raising funds for Parent Project Muscular Dystrophy (www.endduchenne.org) , a non-profit organization that supports advocacy and research efforts related to Duchenne MD. 

More recently, the family has been faced with more than $100,000 in expenses related to the boys’ disease progression, including the need for home modifications, assistive medical equipment and a wheelchair adaptive van.

The family has set a goal of raising $50,000 and so far has raised $7,450.

To further that figure, the barbecue dinner has been planned.

The dinner costs $30 (children under 5 are free) and includes wine, beer and other beverages in addition to a barbecue dinner catered by Moyer’s Catering.

The event will also feature “Upbeat Music” by Andy and Company, dancing, a silent auction and raffle drawings.

Specifically, the proceeds of the benefit will go to Happy 2 be Home, a non-profit organization that is helping the Fritz family meet costs for the home modifications.

Click here to access a mail-in form to sign up for the dinner. You can print it out and mail it to Hope Rocks for Jake & Ryan, P.O. Box 1331, Pottstown, PA 19464.

Or you can click here to order tickets on-line.